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户名:北京爱力重症肌无力罕见病关爱中心

开户行:中国银行股份有限公司北京车道沟支行

账号:3480 6041 0559

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财务部:余小玲13037340303

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北京爱力重症肌无力罕见病关爱中心简介

 

Introduction of Beijing Aili Myasthenia Gravis Care Center

 

  

  北京爱力重症肌无力罕见病关爱中心(简称爱力关爱中心)是一个由重症肌无力患者发起、成立的民间公益组织,2012年2月8日发起成立,于2013年2月8日在北京市民政局取得民非注册,并于2013年12月发起成立“中国社会福利基金会·爱力联合劝募基金”,获得公募资质。

 

  Established in February 8th, 2013, Beijing Aili Myasthenia Gravis Care Center is a non-profit civil organization initiated and founded by the people living with Myasthenia Gravis. In February 8th, 2013, Beijing Aili Myasthenia Gravis Care Center was registered in Beijing Municipal Civil Affairs Bureau, and launched China Social Welfare Foundation- Aili United Found, obtaining the registration certificate for civil non-enterprise units.

 

  爱力关爱中心通过开展各类项目,在患者救助与关爱服务、疾病知识普及、公众宣传与社会倡导、医患合作与医学研究等多个层面为全国重症肌无力社群搭建关怀、救助、支持的服务平台。

 

  Aili Myasthenia Gravis Care Center builds a service platform to provide care, help and support for the nation-wide MG community, through carrying out programs in multiple dimensions, such as patient services of assistance and healthcare, knowledge dissemination, information publicity and society advocacy, doctor-patient cooperation, medical research, etc.

 

  爱力——

 

What have we done?

 

 

  ■ 推动建立了中国重症肌无力宣传月;

  ——We promoted the Annual China MG Month.

 

  ■ 发起了“6•15重症肌无力关爱日”;

  ——We initiated Myasthenia Gravis Care Day, June 15th.

 

  ■ 发布了中国第一部重症肌无力患者生存调查报告;

  ——We published the Chinese first research report about MG patients' living situation.

 

  ■ 制作发布了中国第一部重症肌无力科普动画片《爱力水手的故事》;

  ——We made and released Chinese first scientific animation The Story of Aili the Sailor Man.

 

  ■ 举办了全国首届重症肌无力患者大会暨海峡两岸交流会;

  ——We held the first China Myasthenia Gravis General Meeting & Cross-Taiwan Straits Exchange

 

  ■ 开通了全国首个重症肌无力400患者服务热线;

  ——We set up the first 400 hotline for the people living with MG in China.

 

  ■ 目前为全国1800余名重症肌无力患者与家庭提供直接的关爱与服务。

  -——We have so far provided direct healthcare and service for 1,800 MG patients and their families.

 

  我们的愿景:让每位病友与疾病和平相处!

  Vision: Let every patient live with MG in peace!

 

  我们的口号:爱,让我们更有力!

  Slogan: Love makes us strong!

 

 

联系我们Contact us

 

400患者服务热线400 Hotline: 400-0234-615


新浪微博Sina Weibo:@爱力重症肌无力关爱中心     机构网站:www.mg-care.org


电话Tel:010-57299600     邮箱E-mail:mg@mg-care.org


地址Add:北京市西城区广安门南街36号天缘公寓A座2508室      邮编 Zip Code100054

                  Aili Myasthenia Gravis Care Center, Xicheng District, Beijing, P.R.China

 

 

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户   名 Name:北京爱力重症肌无力罕见病关爱中心


开户行 Opening Bank:中国银行北京车道沟支行


账   号 Account:3480 6041 0559


支付宝帐户 Account of Alipay:ailizx@163.com


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地址:北京市西城区广安门南街36号天缘公寓A座2508室 邮箱100054 电话:010-57299600 邮箱:mg@mg-care.org
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