关爱服务
关爱服务
医疗救助  Medical Assistance

  

  Small Grants Program-Aili One-to-one

 

  这是针对贫困成年重症肌无力病友开展的生活类救助项目。由资助人按月、定期、定额资助,资助额度为每月100-300元,资助期限为1至5年,帮助重症肌无力患者改善治疗条件,提升生活质量,为病友通过自身努力改善生活、融入社会提供缓冲期。

 

 

  Aili One-to-one is a program for assisting the adults living with Myasthenia Gravis in need of financial support. It is funded by month, at regular intervals and with the same amount, which ranges from 100 to 300 RMB. The funding length is between 1 and 5 years. The program aims at helping MG patients improve treatment conditions, promote the quality of life and prepare for reintegrating into society after self-efforts.

 

              

 

  资助案例:甘肃23岁病友小魏为农村贫困患者,基本用药困难。2012年4月烟台黄女士通过协会为他提供药物资助,包括“溴吡斯的明”、“强的松龙”、“依木兰”三种药物,现已资助一年用药费用2820元。

 

  Case 1: The 23-year-old MG patient Xiao Wei lives in a poor village in Gansu Province and essential drugs cannot be guaranteed. In April, 2012, Mrs. Huang from Yantai began to offer him drugs through our care center, including three drugs pyridostigmine, prednisolone and imuran. So far Mrs. Huang has funded one-year drug expenditure for 2820 yuan.

 

  资助案例:河南21岁病友小李来自农村贫困单亲家庭,基本用药困难。2012年5月,河南张俊霞女士以“一对一”方式每月资助其300元帮助用药与改善营养。小李目前病情稳定,生活乐观,现为协会义工与感恩工作室成员。

 

  Case 2: The 21-year-old MG patient Xiao Li is from a single-parent family in rural poverty-stricken area in Henan Province. The essential drugs cannot be guaranteed, either. In May, 2012, Mrs. Zhang Junxia from Henan Province began to fund him in taking medicine and improving nutrients. Every month Mrs. Zhang pays 300 yuan to Xiao Li as Aili One-to-one requires. living in stable condition and with optimistic attitude, Xiao Li now works as our volunteer and becomes a member of Thanksgiving Studio.

 

  

     

 

  重症肌无力危象是指患者由于病情加重或治疗不当,导致机体不能维持正常通气和吞咽功能的危急状态。由于重症肌无力的病情是可逆的,这时只要及时插上呼吸机和胃管,并给予恰当治疗,患者就能重获新生。

  “爱力新生”危象应急救助基金可以帮助贫困病友在发生危象时,得到及时治疗,避免因经济困难延误治疗或放弃治疗,及时挽救病友生命。

 

  Myasthenia Gravis crisis refers to the critical condition when patients cannot maintain normal ventilation and swallow due to the aggravation of disease or improper treatment. But the deadly crisis can be eased if patients can be given respirator and gastric tube in time, as well as receive proper treatment.

  MG crisis emergency fund "Aili Reborn" can help the poor patients receive timely treatment when crisis happens, and avoid the situation that patients delay or give up treatment owing to economic hardship, so that patients' lives can be saved in time.

 

 

              

 

  危象救助案例: 2012年5月,黑龙江24岁女孩小刘发生重症肌无力危象住院抢救,病友及社会各界捐款36000余元。病友小刘16天出院,共花费医药费56672.16元,目前生活完全自理,口服药物,身体状况稳定。

 

  Case 1: In May, 2012, the 24-year-old MG patient Xiao Liu was sent to hospital in emergency after Myasthenia Gravis Crisis happened. Donations from MG patients community and the society reached 36,000 yuan. Xiao Liu was discharged from the hospital after 16-day treatment, paying medical fees for 56,672.16 yuan in total. Now she can take care of herself completely, take oral drugs and live in stable condition.

 

  危象救助案例: 2012年7月,广西25岁女孩小杨发生重症肌无力危象住院抢救,病友及社会各界捐款14000余元。病友小杨16天出院,共花费医药费14962.3。目前生活自理,口服药物,现为协会义工和感恩工作室成员。

 

  Case 2: In July, 2012, the 25-year-old MG patient Xiao Lang was sent to hospital in emergency after crisis occurred. Fundings from MG patients community and the society counted to 14,000 yuan. Xiao Yang left hospital after in-patient care for 16 days, costing 14,962.3 yuan. Able to take self-care and oral drugs, she now works as our volunteer and becomes a member of Thanksgiving Studio.

 

 

 

 

 

 

 

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